Living with Dementia: Mary Agnes tweets

Please check out WBUR, Boston’s NPR station and website.

They have done a great job covering a story about Theresa and Mary Agnes – a Boston-based daughter and mom (age 82) living with early stage Alzheimer’s. A year ago, Theresa started a Twitter account (@maryagneskelley) that shares her mom’s voice with the world. In the below excerpt, Mary Agnes says, “easy does it… but do it.” This inspires my own steps forward and illustrates the wisdom expressed by persons living with dementia who are so often our teachers (even when compromised physically and mentally by degenerative cognitive disease). Words are not always possible. Love and light move in and through us without form.

Moving forward with a listening heart,
vision, inquiry and action,
~ Mary

Mary is still in the earlier stages of Alzheimer’s disease.

“I’m ready to accept the fact that there’s a time where she may not remember me,” Theresa said. “A neurologist said to me once, you may want to get your shield of armor ready. But that doesn’t bother me personally. Even if she doesn’t remember me, I’ll still be coming down here to be with her.”

Theresa said she plans to keep tweeting for her mother until the very end.

“That will be my hardest tweet to send out, when Mary goes straight to heaven. But we’re going to keep tweeting, right?” she asked her mom. “Oh, I hope so,” Mary said. “I’ll get better at it in time.”

Theresa asked Mary if there was anything she wanted to say to all her followers on Twitter.

“Easy does it,” Mary said. “But do it.”

“That might be her tweet for the day,” Theresa laughed. “Yeah, we’ll tweet that later.”

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